Well we are on night two of Peritineal Dialysis. And so far, We HATE it!!!!!.... Sheis in so much pain every hour. It only lasts about 5 minutes but that 5 Minutes feels like a lifetime. I hate not knowing thepain she is feeling. I hate that I cannot help her. I hate the look inher eyes when she looks at me and cries, "Mommy it hurts" When will thsi go away?? Can someone tell me that? This is suppsoe to be the best thing for her to be able to live a normal life. But she has to suffer before that can happen. It does not seem right to me. Who has the answers? NOONE!!!!!!!!!
URGHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH
Think I will go for a quick walk now.
Tuesday 31 January 2012
Monday 30 January 2012
Week 4
Well headed into week four of being in London, We start her Peritonial Dialysis tonight. We did have a little scare on Friday night because my poor Breanna ws complaining of leg cramps. She is not a complainer, so when she starts crying, It hurts. We called Dr Grimmer and she suggested we take oer tot he Emergency. So we pulled out a wheelchair and dad drove her crazy, I mean over...lol
Once we got there, the Dr's were nto sure, They ran some tests on her leg, then sent her for xrays. She did not like that very much becasue she had to move her leg around. Once that was done we went back to her room to wait for the results.
Guess what???? WHile waiting Breanna become VERY gassy. And then she went to sleep...Yep, that ws her problem. She needed to let out some steam. And that she did. A third Doctor came in and had no idea wat was wrong. It is now three days leter and she has had no cramps. She feels just fine.
I finally got a good night sleep over the weekend. I am well rested. I am sure until tonight when the Nightly dialysis starts. WIsh me luck!!!!!!!!
Once we got there, the Dr's were nto sure, They ran some tests on her leg, then sent her for xrays. She did not like that very much becasue she had to move her leg around. Once that was done we went back to her room to wait for the results.
Guess what???? WHile waiting Breanna become VERY gassy. And then she went to sleep...Yep, that ws her problem. She needed to let out some steam. And that she did. A third Doctor came in and had no idea wat was wrong. It is now three days leter and she has had no cramps. She feels just fine.
I finally got a good night sleep over the weekend. I am well rested. I am sure until tonight when the Nightly dialysis starts. WIsh me luck!!!!!!!!
Thursday 26 January 2012
3 weeks later
SWell it has been a long three weeks. We are still in Hospital, well actually this week she was discharged to Ronald MCDonald House. She will be readmitted back to hospital next monday, where she will start her Peritaniel Dialysis and if all goes well with that she will be home hopefully a week after that. She is still feeling great and if youask her, she is not sick.
Just a quick update as I have been trying to get on here but, well I just didn't.
Today I am tired. I did not fall alseep until about 2:30 this monring, only to be woken up by Breanna at $;30 in Pain. This does nothappen all the time so I was kind of worried. But when I put my hand on her belly she relaxes and goes back to sleep. So it all worked out and Ihave notified the NUrse at the hospital already. Just have to remember to keep track of Everything. They say I don't have to go nuts, but if anyone knows me.....I willdrive myself insane...lol
have a great day everyone!!!!
Just a quick update as I have been trying to get on here but, well I just didn't.
Today I am tired. I did not fall alseep until about 2:30 this monring, only to be woken up by Breanna at $;30 in Pain. This does nothappen all the time so I was kind of worried. But when I put my hand on her belly she relaxes and goes back to sleep. So it all worked out and Ihave notified the NUrse at the hospital already. Just have to remember to keep track of Everything. They say I don't have to go nuts, but if anyone knows me.....I willdrive myself insane...lol
have a great day everyone!!!!
Tuesday 10 January 2012
2nd Day of Blogging...
Ok...Dad was informed of his Angels' test results today. Eyes were tested...100% OK. Hep B and C results...Negativeon both. Things are moving in a positive direction. Dad has also been crazy busy today finding corporate sponsors, door prizes, and touching base with many old friends for help with our Bree.
Hope to have the word on our Fund account tomorrow, get more information on the charity license, and much more...Thank you to our behind the scenes friends and everyone involved here, ciao for now, Mark Van Watteghem
Hope to have the word on our Fund account tomorrow, get more information on the charity license, and much more...Thank you to our behind the scenes friends and everyone involved here, ciao for now, Mark Van Watteghem
Daddy's First post
Dad's here and trying to blog with no help...I'm in trouble.
Well here we are, you never know what life's going to hand you along the way, this one sure threw us for a loop. If anyone would have told me as our Angel was trying her heart out to play hockey in the Christmas Hospice tournament, and that she was in total renal kidney failure, we never in a million years could've guessed. Breanna has this gift of never complain, just do it attitude. She went out for warmups and did her thing to prepare for battle. When the game was about to start she asked the coach, "Coach can I miss the first shift", swallowing her spirit with every last bit of energy she had. To play in the games she did, she looked to us like she should, a bit slower due to the cold she had had for a couple of weeks. I said to a fellow parent, she does have a cold, but something else was really wrong. With her head slumpped over after many shifts, in behind the bench, she'd suck it up and miss a few shifts then back out for 1/2 of a shift. She only missed one game in the tournament. Before the Championship game I asked the coach to just give her minimal ice time, he agreed, she did it, finished the tourney, the team lost 4-3, but our Angel had won. Likely now to be her last game for a very long time.
Mom took our Angel back to their home and noticed a rash, little paler than usual and after a menial task of PennySaver delivery felt weak, got sick, then to the clinic they went. Dr. Andary was suspicious and ordered the blood work. Too pale, rash, weakness, flue like symptoms, back pain, signs of big trouble. Total renal kidney failure it was, confirmed at the Hotel Dieu emergency, then book the room at Victoria Children's hospital for the month. Dr. Angela Novena said to us,"pack for 3 or so weeks", your daughter is in need of immediate attention. The scope of this just hit us, we had an Angel in distress. Breanna through this whole event only complained about the lock in her arm for fluids, etc.
Now we come to the Victoris Children's hospital when Dr. Filler, Pediatric Nephrologist, explained our Angel had likely the chronic case of failing kidneys and would need a transplant, which is where we are. Many tests later and it was confirmed end stage kidney failure.
Only 6 days ago, at my home, and now our Angel is in the best care in London. The outpouring of support from everyone has overwhelmed me and our family, I can not put into words how humble I feel. Thank you everyone...Next blog to be shorter for sure...well maybe, shutting me down is tough also, Mark Van W
Well here we are, you never know what life's going to hand you along the way, this one sure threw us for a loop. If anyone would have told me as our Angel was trying her heart out to play hockey in the Christmas Hospice tournament, and that she was in total renal kidney failure, we never in a million years could've guessed. Breanna has this gift of never complain, just do it attitude. She went out for warmups and did her thing to prepare for battle. When the game was about to start she asked the coach, "Coach can I miss the first shift", swallowing her spirit with every last bit of energy she had. To play in the games she did, she looked to us like she should, a bit slower due to the cold she had had for a couple of weeks. I said to a fellow parent, she does have a cold, but something else was really wrong. With her head slumpped over after many shifts, in behind the bench, she'd suck it up and miss a few shifts then back out for 1/2 of a shift. She only missed one game in the tournament. Before the Championship game I asked the coach to just give her minimal ice time, he agreed, she did it, finished the tourney, the team lost 4-3, but our Angel had won. Likely now to be her last game for a very long time.
Mom took our Angel back to their home and noticed a rash, little paler than usual and after a menial task of PennySaver delivery felt weak, got sick, then to the clinic they went. Dr. Andary was suspicious and ordered the blood work. Too pale, rash, weakness, flue like symptoms, back pain, signs of big trouble. Total renal kidney failure it was, confirmed at the Hotel Dieu emergency, then book the room at Victoria Children's hospital for the month. Dr. Angela Novena said to us,"pack for 3 or so weeks", your daughter is in need of immediate attention. The scope of this just hit us, we had an Angel in distress. Breanna through this whole event only complained about the lock in her arm for fluids, etc.
Now we come to the Victoris Children's hospital when Dr. Filler, Pediatric Nephrologist, explained our Angel had likely the chronic case of failing kidneys and would need a transplant, which is where we are. Many tests later and it was confirmed end stage kidney failure.
Only 6 days ago, at my home, and now our Angel is in the best care in London. The outpouring of support from everyone has overwhelmed me and our family, I can not put into words how humble I feel. Thank you everyone...Next blog to be shorter for sure...well maybe, shutting me down is tough also, Mark Van W
Monday 9 January 2012
Breannas Battle
WOW!!!! I would like to start off by thanking everyone for everything. There is so much info being thrown at me from all angles. It has been 6 days of information and I am not sure how much I have comprehended.
I will start bloggin everyday, Maybe twice a day. But right now I just wanted to start by saying a huge thank you. I cannot name names as there are so many people. My Biggest Thanks at this moment in Time is to the DR that had a concern about my Angel. When the time comes I will mention names or thank those personally that I just can't bring myself to do today.
Right now Breanna and I are going to hang out, with no nurses, no doctors and no visitors.
Just Mom and Daughter time. She is doing good, she is a trooper. She is a fighter and she will fight this till the end.
I will start bloggin everyday, Maybe twice a day. But right now I just wanted to start by saying a huge thank you. I cannot name names as there are so many people. My Biggest Thanks at this moment in Time is to the DR that had a concern about my Angel. When the time comes I will mention names or thank those personally that I just can't bring myself to do today.
Right now Breanna and I are going to hang out, with no nurses, no doctors and no visitors.
Just Mom and Daughter time. She is doing good, she is a trooper. She is a fighter and she will fight this till the end.
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