Bladder Reflux

Some are aware that Breanna has something called Bladder Reflux, Basically this means that her bladder does not do a complete void.  When she goes to the washroom, she leaves some behind,  casuing it to travel back up into her kidneys.   This has caused alot of the issues she is having.  But we are working on her bladder muscles with intermittant catheterization.   This means that we have to do a manual catheter insert and completly empty her bladder.  We do this for times a day.  Well right now we are doing it 3 times a day but next week we will be doing 4 times a day which is what the DR ordered.  She will have to continue this porcess for many years to come.  Once she has a new kidney,  we will still have to do this process until her Bladder muscles rebuilt themselves and she is able to have control.,  In the begining,  this was not easy.   Not for either one of us.  For about a week,   you would have thought she was being raped!
Yes  Raped!  No parent should have to do this to their child.   BUT we do not have a choice.  Until she is ready to learn to do this herself,  this is something I have to do.  Why??????   Because I am her mom,  and that is what we do.   It did not take long for Breanna to calm down.  She does not yell anymore, we make jokes,  and talk about making apple juice.   We usually say it is for her brother.  I am pretty sure he will never take a bottle or a glass of apple juice from his sister Breanna.  Can't say I blame him...lol   This is the Joke that helps her get through this ordeal.   She is a trooper.  She now laughs and it is over and done withing 5 mintues.  It is second nature,  just like everything else she has had tolearn to deal with.  Why?  Becasue she has to!   It is a part of life.  Her life.   Till this day,  she is still the one thjat gives me the strenght that I need to get this everything we are dealing with.  It is not easy.   Not easy for anyone in our family.
But as long as we see progress,  we can't look back.  We have our baby girl at home with us.   She is not laying in a hospital bed,  she is dealing with life,  as it is thrown at her.   

Donation process has ended for Dad!!!!!!

Frustration!!!!!!!!!!!    That is one of the things that I felt when I got the news, that dad is not able to donate his kidney to Breanna.  It has been a VERY long 6 months, only to fiund out that it was for nothing.   Nothing for breanna anyways.  The good news that came from it was dad has some things of his own he needs to take care of.  So what is the next thing we do???  This not an easy thing to decide to do for ANYONE!  BUT.....we cannot wait for a phone call back or an email that has gone unanswered.  People are still living their lives and I am OK with that.  But don't ignore one of the most precious things to me.  That bothers me!!!!!!   That makes me mad!!!!!   If you decide you want to do something,  That is great.  If something comes up and you have changed your mind, that is fine to.  I get it!  But do not ignore the situation or the people that you already spoke to.   GRRRRRRRRRRR    Take a long look at what is going on your own life and make sure BEFORE you volunteer to do something like this for anyone, That it is the right decision for you and all involved.  I am frustrated that this wait is longer and getting longer everyday.  The word is out that Breanna needs a kidney.  Along with many many people in this world,  Breanna is my number one,  that needs a kidney.  She is the one I am fighting for today.  So for anyone that wants to do something,  I am putting the word out there that THEY need to take the step and make the call to Jennifer Cross in London,  She is on the transplant team and she is the go to person that takes care of everything that needs to be done.  Her phone number is 1-519-685-8500 ext. 35932.   You may also send her an email as she is a very busy person, as you could imagine.  Email is jennifer.cross@lhsc.on.ca.   It may take her a few days to get back to you.   But....she is full of information and knowledge.  Nothing is communicated to us.  It is all private and confidential. 
Overwhelmed  was my next feeling.   I have had a few people come to me and say, I want to do this for Breanna.  WOW!!!!  People that I did not expect.   I still come to tears when I talk to anyone about one person in particular.   One of my favorite cousins!!!!!!    It hit me hard when I heard that she wanted to do this.  Putting my baby as her number one.   I still have not gotten over the overwhelming feeling.   I know that I have to do something about this but right now,  it is hard,  Very hard for me.  Being overwhelmed with the amount of support has not stopped.   This is a new kind of overwhelmed!!!!   I can't describe it.

OK  That is enough,  just typing i am in tears.  REALLY!!!!!!