Small SetBack due to Reflux

Breanna continues her fight every day.  She is your typiocal teenager playing outside with her friends and going to school everyday.  Other then all the pills she has to take and the nightly 10 hours of Dialysis.  Her blood continues to come back with no concerns.  Herphosphate was a little high this week but no concerns.  I got the results from her ultrasound regarding the bladder reflux.  She basically needs a new bladder!!!!!   Her post void residue was high at 358cc and ger curve itself was abnormal (staccato).  Her urodynamics showe a good bladder capacity but slightly high filling pressures between 30 to 40 cm h2o.  The concern here is her pressure is rising  early in her fill.  We do have to repeat this test with an ekg.  Also we have to have an MRI.  Once we repeat this test we will have some more answers to this issue and we will have more info on what needs to be done to fix the problem.  Worse case will be she will have to have a CIC.  Which is a permenant catheter put in so that she has a full void.  Not a good option but it is an option.  Right now we are trying to train the blasser to have a full bladder and more frequent bathroom trips for Breanna.  This will be a struggle for her as she usually only  going to the bathroom about 3 maybe 4 times a day.  We need to bump this up to 8 to 10 trips.  
She continues the fight while mom stresses about everything that is going on.  I hate that tjhsi is happening to one of my babies and I look at Breanna for the strength to get through day by day.  

This was one of the visits while in London from two of the players from the London Knights!!!!!!!